Finding Peace in the Autism Puzzle

An online resource for families searching for peace on the puzzling road of autism spectrum disorders.

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"For I know the thoughts that I think toward you, says the LORD, thoughts of peace and not of evil,
to give you a future and a hope." Jeremiah 29:11 (NKJV)

Sharing resources, research, ideas, inspiring scripture, success stories and even failures...

Thursday, October 17, 2013

National Disability Employment Awareness Month

Hi all! I am reposting this great article that my wonderful friend, Kerry Magro, wrote for the Autism Speaks blog. As you may know, October is national disability employment awareness month.  Kerry's article focuses advice on how young adults with autism can prepare for entering the work force. Here are some startling statistics:

-The number of such (autistic) individuals has increased by more than 121 percent from 2002 to 2006. Moreover, though adults with autism were employed at higher rates than most disability groups investigated, they tended to work far fewer hours and earn less in wages per week. The study also found that adults with autism were among the most costly individuals to serve. http://www.ncbi.nlm.nih.gov/pubmed/19369389

-For adults with autism, Autism Speaks has found that 9 out of 10 either are unemployed or underemployed, regardless of their IQ or education level. http://www.autismspeaks.org/advocacy/advocacy-news/adult-employment-new-allies-come-board

-One in 3 young adults with autism have no paid job experience, college or technical school nearly seven years after high school graduation, a study finds. http://usatoday30.usatoday.com/news/health/story/2012-05-14/autistic-young-adults-jobs/54954292/1
http://www.nimh.nih.gov/news/science-news/2012/many-youths-with-autism-not-employed-or-in-college-2-years-after-high-school.shtml

OK, enough depressing news, now some upbeat words from Kerry. Please feel free to pass it on! And if you haven't already done so, pick up a copy of Kerry's book, "Defining Autism from the Heart," available at amazon (http://www.amazon.com/Defining-Autism-From-The-Heart/dp/0615818102)

Blessings!
DC

Five Tips for Individuals with Autism on Finding Employment
Posted: 14 Oct 2013 06:00 AM PDT
Autism Speaks Staffer Kerry Magro shares his experiences finding employment and tips to help other adults with autism to do the same.

This is a post by Kerry Magro, Social Marketing Coordinator at Autism Speaks! Kerry was diagnosed with autism at age four. He is a self-advocate and recently released his debut book "Defining Autism From The Heart" in which he discusses his life on the spectrum. 
Last March, I started working full time for Autism Speaks as a Social Marketing Coordinator. After finishing my course work for my Masters in January, I was thrilled that Autism Speaks would offer me an opportunity for my first full time position within their organization.
My employment record before this included several internships and part time jobs. As we get further into National Disability Employment Awareness Month, I wanted to share some tips I’ve learned from my experiences with individuals with autism looking for employment.
1.     Find your passion and maximize it.
During college, I was constantly told about the hardships I would face trying to find a job in this economy. One way I managed to work through that was working on my first book called “Defining Autism From The Heart”. I have always loved to write and using that passion to do something I was interested in really benefited me. During college, I also started the paperwork to establish my 501 (c) (3) non-profit organization to build on another passion of mine, Self-Advocacy. I know these both seem like big projects and they did take a few years of work to accomplish. But no matter what you do, you should always be reflecting on what you’re passionate about and try to turn those passions into opportunities for yourself.

2.     Ask Questions.
In school they always tell you that the only dumb question is not asking that question. I’ve always seen asking questions as a critical element to whatever you are doing. No matter what type of education you have, self-advocating and being aware are key to any success you’ll have. Many young kids I know with autism have trouble with this. For those educators out there, teaching these “social skills” and self-advocacy skills can be critical to future success.
3.     Do Your Research.
This goes hand-in-hand with what I mentioned earlier about reflection. Research needs to become both an internal and external factor in your efforts to find a job. You need to target your strengths and then capitalize on them. Take the first two tips above, internally try to process this and then switch to external research, which is ultimately who is hiring and if a job isn't available, what possibilities there are in these situations to create volunteer/internships. Getting experience as a volunteer or an intern may open the door to entry-level employment within organizations or companies.

4.     Don’t Run From Learning Experiences. 
Many individuals with autism who get an early diagnosis have already been working a nine to five job focusing on their therapies. So as young adults, they have already had work experience getting themselves to the point where they can be employed today. Hard work is not new to them. No matter what’s on the table, you should always give it a test run! Make sure you are very open about the accommodations you need in that workplace and then give it a few days to feel it out.
5.     Don’t Sell Yourself Short! Reach for the Stars!
No matter if this is the first job you are looking for or your 30th, never sell yourself short. Always go in with the mantra that no matter if you have autism or you don’t, you can and will achieve greatness. I always tell kids I consult for to “define their autism.” Go look for work with the confidence that you are who you are and that you have a passion and unique ability that can be valued in the workforce. Then find the places that will best value that.
Individuals with autism are reaching adulthood every day. I encourage those young adults out there who do have positive job experiences to share them with our community. When I was a kid, I didn’t know that one day I would have a job in something I enjoyed, but I do now and it’s an amazing feeling! Our autism spectrum is very huge, don’t get me wrong, but I do believe there are opportunities out there and more will be available in the future.

To learn more about National Disability Employment Awareness Month go here. You can also download our Employment Tool Kit to help in your search for a job here. 
Posted by dcot at 8:06 PM 3 comments:
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Sunday, September 22, 2013

Great article on play and autism

Blessings, everyone! It's been a busy month in our household with our little guy starting kindergarten! I have a wonderful piece that I'm working on right now, but while I polish that off, I wanted to share this great article I read about play and autism. I hope you find it helpful in understanding your loved one(s) with ASD. As usual, I will post the link in my Parent Resources page for future reference.

Have a blessed week!
DC

What Is 'Play' to a Child With Autism?

Motion preferred to arts and crafts or pretending, study finds
Tuesday, August 27, 2013
HealthDay news image
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TUESDAY, Aug. 27 (HealthDay News) -- When free to choose, kids with autism pick games that engage their senses and avoid games that ask them to pretend, a new study finds.
Experts said the results are not surprising. It's known, for instance, that when children do not show an interest in pretend play, such as "feeding" a doll, by about age 2, that is a potential sign of an autism spectrum disorder.
What is unique about the new study is that it went out into the real world, said lead researcher Kathy Ralabate Doody, an assistant professor of exceptional education at the State University of New York, Buffalo State.
Doody's team spent six months observing children who attended a local museum's Au-some Evenings, a monthly program designed for children with autism. The program offered 20 exhibits with different activities, including a train that children could climb on, arts and crafts and a make-believe farm where kids could pretend to pick vegetables and collect eggs.
The researchers found that children with autism were naturally drawn to activities that got them moving, or allowed them to watch moving objects. The biggest crowd pleaser was an exhibit in which kids climbed a short staircase and dropped a ball into a track to watch it travel over hills. Another favorite was a windmill that the children could spin.
On the other hand, arts and crafts, and exhibits that required pretending were the least popular, according to the findings, which were reported in a recent issue of the North American Journal of Medicine and Science.
"We know that kids on the spectrum have a fascination with things that move, and with repetition," Doody said.
In contrast, she said, pretend play requires "putting yourself in someone's shoes," and talking and acting as if you were another person. That's an ability with which children with autism spectrum disorders struggle.
The current findings are what you would expect, said Dana Levy, a clinical assistant professor of child and adolescent psychiatry at NYU Langone Medical Center, in New York City.
"I think it's a really nice idea," Levy said, referring to the museum's autism spectrum disorders program.
"We do know that kids with autism are able to practice social skills when they're doing something they enjoy," Levy said. So if an activity gets your child around other kids -- and talking or learning to take turns, for instance -- it could benefit his or her development.
"If it becomes just a solitary thing, though, it's not really helpful," Levy said.
Plus, letting children do only the things they're innately drawn to can be limiting. When young children with autism spectrum disorders are in therapy, pretend play is typically part of it, Levy said.
But if there is a social setting with activities a child with autism enjoys, parents can use that as a door, Levy said. If your child loves the museum's stair-climbing exhibit, on your next visit tell him or her that you're going to try one new thing first and then go to the stairs, Levy suggested.
It's estimated that about one in 88 children has an autism spectrum disorder -- a group of developmental disorders that hinder a person's ability to communicate and interact socially. Autism spectrum disorders range widely in severity: Some children speak very little and have an intense preoccupation with just a few things, while other kids have normal or above-normal intelligence and milder problems with socializing.
For the current study, Doody's team watched children during six Au-some Evenings events. An average of 31 children with autism spectrum disorders and 22 without (usually siblings) attended each night. One limitation of the research, Doody said, is that they had no medical information on the children, including the severity of their autism.
Doody, who has a child with an autism spectrum disorder, said it would be helpful if more public places had events like this, since parents can struggle to find activities the whole family enjoys -- particularly if they also have kids without autism.
She said the current findings could help community programs develop inclusive activities so kids with autism have more chances to interact with typically developing children.
"Being in a social environment is great for them," Levy said.
Even if your local museum doesn't have a special program, she said, it might have something that would appeal to your child. If he or she likes to look at maps, for instance, a museum or park that has maps scattered throughout might be a good place to start.
SOURCES: Kathy Ralabate Doody, Ph.D., assistant professor, exceptional education, SUNY Buffalo State, Buffalo, New York; Dana Levy, Psy.D., Ph.D., clinical assistant professor, child and adolescent psychiatry, NYU Langone Medical Center, New York City; July 2013, North American Journal of Medicine and Science
HealthDay
Copyright (c) 2013 HealthDay. All rights reserved.
Posted by dcot at 8:01 PM 1 comment:
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Sunday, September 15, 2013

Better late than never...

Sorry, folks! I should have posted this a few weeks ago, but we were kind of nutty getting our little guy ready to start kindergarten... in a general education class!!!! YIKES!!! Anyway, here is a wonderful article that came out in preparation for back to school. I will post it in my Parent Resources page. I think many of the tips are helpful for any new situation, not just starting school and many of the tips are great for every day use. Great info for future reference.

Blessings!
DC


Back-to-School Tips May Help Ease Sensory Overload in Kids

Students with 'sensory processing disorder' often struggle with adapting to change
By Mary Elizabeth Dallas
Friday, August 30, 2013
HealthDay news image
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  • Child Behavior Disorders
  • Child Mental Health
FRIDAY, Aug. 30 (HealthDay News) -- Transitioning from summer to a new school year is hard for any kid, but it is particularly difficult for children who have trouble processing new sensations, according to an expert on what is known as "sensory processing disorder."
Sensory processing disorder is a neurological problem that affects behavior and learning. For kids with this disorder, too much sensory overload or the wrong kind of stimulation can lead to problems with attention, coordination and impulsiveness as the child tries to either increase or decrease the sensations they are experiencing.
Varleisha Gibbs, an assistant professor of occupational therapy at University of the Sciences in Philadelphia, explained that the transition back to school disrupts the daily routines that these children have established during the summer. She noted, however, planning ahead can help ease the stress of this transition.
"Students with sensory processing disorders typically struggle with adapting to change," Gibbs said in a university news release. "A new school year brings an abundance of changes, including new teachers and classmates, schedules and routines, classrooms and settings, as well as new demands and expectations in the classroom."
To ease the transition to a new school year for children with sensory processing disorders, Gibbs recommended that children, teachers and parents or caregivers take the following steps:
  • Plan a visit. Before the first day of class, arrange a visit to the school to familiarize the child with the school setting and the teacher. If possible, take photos of the surroundings to help the child acclimate to the environment ahead of time.
  • Be proactive. Reach out to the school early to inform administrators about the child's therapy schedule. A child's private occupational therapy sessions should be coordinated with any therapy offered at school so they do not overlap.
  • Pack a sensory kit. Certain fidget devices may help keep children calm and focused during a stressful transition time. These objects include stress balls, seat cushions, gum and music with headphones. Teachers can also provide a variety of seating options in the classrooms, including beanbag chairs and therapy balls.
  • Be open. Because not all children with sensory processing disorders are placed in special education, communicating a child's needs to teachers and school administrators can help ensure they are able to benefit from their calming strategies. For example, these children may need to chew gum in class or listen to headphones between classes.
  • Shop early. Purchase backpacks and school clothes well in advance so children can try them on and identify any items that are bothersome or uncomfortable. Be sure to remove all tags, wash the clothes and find underwear that can alleviate any irritability from the fabric rubbing against the skin.
  • Set an example. When parents are calm and collected, it's easier for children to feel the same way about going back to school.
SOURCE: University of the Sciences, news release, Aug. 28, 2013
HealthDay
Copyright (c) 2013 HealthDay. All rights reserved.
Posted by dcot at 6:24 PM 1 comment:
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Monday, August 19, 2013

Finally some guilt-free research findings!!!

My regular readers will know I'm all about sharing the newest research findings. I've stopped doing that as much on this blog because it feels like the "blame game," or it's just bad news all around. Today a new study was in the news and this one finally has good news that we can feel happy about and not feel guilt or pessimism for the future. It's about ASD and standardized state testing. I hope it gives you a little bit of hope and peace!

Blessings!
DC

Kids With Autism Outperformed Others on Math Test, Study Found

Parents might be reassured by focusing on children's strengths, researcher says
By Robert Preidt
Friday, August 16, 2013
HealthDay news image
Related MedlinePlus Pages
  • Autism
  • Child Development
FRIDAY, Aug. 16 (HealthDay News) -- Children with autism and average IQs consistently did better on math tests than non-autistic children in the same IQ range, according to a small new study.
The superiority in math skills among children with autism was tied to patterns of activation in a particular area of the brain, an area normally associated with recognizing faces and visual objects.
"There appears to be a unique pattern of brain organization that underlies superior problem-solving abilities in children with autism," study senior author Vinod Menon, a professor of psychiatry and behavioral sciences at Stanford University, said in a university news release.
The study included 18 children with autism, aged 7 to 12, and a control group of 18 children without autism. All participants showed normal verbal and reading skills on standardized tests, but the children with autism outperformed their peers without autism on standardized math tests.
The researchers also had all of the children work on math problems while their brain activity was measured using MRI. The brain scans of the children with autism revealed an unusual pattern of activity in the ventral temporal occipital cortex, an area of the brain specialized for processing faces and other visual objects.
The study will be published online Aug. 17 in the journal Biological Psychiatry.
"[Previous research] has focused almost exclusively on weaknesses in children with autism," said Menon, a member of the Child Health Research Institute at Lucile Packard Children's Hospital. "Our study supports the idea that the atypical brain development in autism can lead not just to deficits, but also to some remarkable cognitive strengths. We think this can be reassuring to parents."
Menon said children with autism sometimes exhibit exceptional talents or skills. For example, some can instantly recall the day of the week of any calendar date within a particular range of years, and others have outstanding math skills.
"Remembering calendar dates is probably not going to help you with academic and professional success," Menon said. "But being able to solve numerical problems and developing good mathematical skills could make a big difference in the life of a child with autism."
About one in 88 children has some form of autism, according to the U.S. Centers for Disease Control and Prevention.
SOURCE: Stanford University, news release, Aug. 16, 2013
HealthDay
Copyright (c) 2013 HealthDay. All rights reserved.

To read the original story: http://www.nlm.nih.gov/medlineplus/news/fullstory_139817.html
Posted by dcot at 12:12 PM 2 comments:
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Friday, July 26, 2013

Thank you, Kerry Magro!

Thanks to our amazing friend, Kerry Magro, Social Marketing Coordinator at Autism Speaks, for putting my boy and I as the cover photo this week on the Autism Speaks' Facebook Page!!!

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Having said that, I should remind everyone that Kerry's book, Defining Autism From the Heart, is now available on amazon.com! I HAVE read the book at it is AMAZING!!!! You can read my review of the book here:
http://www.amazon.com/Defining-Autism-From-The-Heart/product-reviews/0615818102/ref=dp_top_cm_cr_acr_txt?ie=UTF8&showViewpoints=1

So, run and check out Autism Speaks on Facebook and don't forget to pick up your copy of Kerry's book!!!
Blessings!
DC
Posted by dcot at 5:10 PM 2 comments:
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Recommended Scripture:

  • Jeremiah 29:11
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