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"For I know the thoughts that I think toward you, says the LORD, thoughts of peace and not of evil,
to give you a future and a hope." Jeremiah 29:11 (NKJV)

Sharing resources, research, ideas, inspiring scripture, success stories and even failures...

Monday, October 13, 2014

Triggers of Behavior in Children with Autism

Hello all! Here's another great visual that I think every single person who has a loved one with ASD should have AND share with their teachers, caregivers, family members... EVERYONE! I can't seem to find the original source, even by doing an extensive search online, so I will post the link to Pinterest, where I found it originally. Seriously, pass it on!!! The more people understand these small changes they can make or situations they can avoid, the easier it will be for our loved ones to be included in this world!
Blessings!
DC


Thursday, October 2, 2014

Since it's not about me...

Great article shared by a friend: first hand perspective of church going for an adult with ASD. Truly eye opening!

Blessings!
DC


RSS
'Mr. Spock goes to church': How one Christian copes with Asperger's syndrome
Brant Hansen, a host on Christian radio, says his Asperger's syndrome once made him feel like an alien at church.
October 19th, 2013
10:28 AM ET
Opinion by Brant Hansenspecial to CNN
(CNN) – In the book “Jim and Caspar Go to Church,” an atheist turns to a Christian minister as they're watching a Sunday morning church service and earnestly asks, "Is this what Jesus told you guys to do?"
I've grown up in churches and I'm a Christian, and I'm right there with the atheist.
I honestly don't get the connection. (To be fair, I've grown up on Earth, too, and there are times that I don't understand any part of this place.)
You see, years ago, I was diagnosed with Asperger's syndrome - and like a lot of "Aspies," sometimes I'm convinced that I've landed on the wrong planet.
For those of you who don't know the medical lingo, Asperger's syndrome is an autism spectrum disorder, but not as severe as what most people think of as autism.
It basically comes down to this: those "normal human" rules for things like eye contact, when to smile, personal distance - we just don't get them.
What's more, Aspies like me don't like those rules. They make no sense to us. So usually, we just say stuff - bluntly - and stare uncomfortably at the ground. That's how we roll.
But it gets even trickier for people of faith like me.
Feeling out of place at work is one thing. Feeling like an alien at church is a whole other matter.
Imagine Mr. Spock at an evangelical Christian tent revival, and you’ll get the idea.
And my father is a pastor, so I was in church a lot.
Multiple times, each week, every week, I found myself wishing I'd be moved by the worship music, or that I could shut off my skeptical mind during the sermons.
I'd see people in church services, Christian concerts and Bible camps overcome by emotion and enraptured with charismatic speakers, and I wondered why I didn't feel that way.
Why did I always feel like a cold observer?
After going to college, I was convinced my lack of feeling meant I was missing something, spiritually, so I joined charismatic Christian groups in which emotional manifestations of the Holy Spirit are common.
I desperately wanted to have what they had - an emotional experience of God's presence - and asked them to pray over me.
It didn't work.
When I didn’t move with the Holy Spirit or speak in tongues, they told me it was because I had rejected God.
I worried that it was the other way around: God had rejected me.
Maybe I felt like an alien because I deserved it. I deserved to be alienated, irretrievably and forever far from God.
I tried to pray, read the Bible, and do all the "right stuff." But I still felt out-of-touch.
I wondered if I was so broken, such a misfit that God simply took a look at me and decided to move on.
I wish I’d known then that I was an Aspie. And that God loves Aspies.
I still feel alienated from many parts of Christian culture, but Jesus himself finally reached me.
And man, did I feel that.
To people who are beaten down or befuddled by religious rules, Jesus offers something that no one else does: rest. "Come to me, all you who are weary and burdened, and I will give you rest," he says.
And he sums up the entirety of complex and confusing religious laws with this: “Love God, and love your neighbor.”
Beautiful. Even children can understand that.
The Bible tells a story about a man who approaches Jesus and admits that he has faith, but also strong doubts.
"Help me in my unbelief," he asks Jesus.
Jesus doesn't blast him. He loves him. To me, Jesus is the only one who really makes any sense.
Oddly enough, considering my medical condition, I'm now a radio personality on a network that plays Christian music.
It’s a beautiful fit, in many ways, because I get to talk to many people who also don’t fit in, and wonder if God loves them.
It’s true, though, others won’t understand me. I know that. I’m still an alien in the American Christian subculture.
Each evening I retreat from it, and I go straight to the Gospels.
It's not out of duty that I read about Jesus; it's a respite.
I long for it, because I'm awash in two strange and baffling cultures, both the irreligious and religious.
And I long for someone I can finally understand, and someone who might finally understand me.
Brant Hansen is a radio host on the Air1 network, where his show airs from 3-7 p.m. CT. He also writes a popular blog at air1.com. The views expressed in this column belong to Hansen. 
 - CNN Belief Blog

Filed under:Belief • Bible • Christianity • Church • Faith • Health • Jesus • Opinion • Spirituality

Tuesday, September 23, 2014

My favorite visual to explain my child

So, how many times have you found yourself in that situation where you bump into a friend somewhere and you start small talk. In the process, you coax your child with ASD to greet your friend (someone familiar and safe). The greeting goes as usual (planned/scripted), then it's time for small talk. Your friend asks a simple, typical question and your child responds with something so out of this world (yet very logical to him/her) and you find yourself "translating" between your puzzled friend and your child who desperately wants to connect but has now lost interest. Sound familiar??? Well, here is my all time favorite visual that describes this situation. I absolutely love it and share it with as many folks as I can! I found it on Pinterest and traced it back to the following site: http://thelittleblackduck.com.au/lbd/communication-difficulty-and-autism/

I hope you find it as helpful and useful as I did. Enjoy!
Blessings!
DC



Monday, September 22, 2014

Because it's not about me!

Hello, friendly readers!

After much prayer and thinking, I have decided to turn this blog into a peaceful location for resources to help our kids and families. I will continue to post inspirational things as well, but I've just come to the realization that autism is not about me. As a parent, I need to help my child fit into this world-- not to fully assimilate into it, but to be able to be a part of it. THAT is how I've learned to find peace. As long as I know he is not accepted, understood or acknowledged as a part of people's lives, I will not be at peace. In my journey I have discovered that his peace is my peace. I've learned to find peace on this journey-- you've all learned about that with each of my posts-- now it's time to help my child find his peace and his place. My hope is that with each post you will be able to refill your arsenal of tricks to help your loved ones with ASD. I will continue to post interesting research findings, though I'm over trying to figure out "what?" or "why?" It's time to move on and think about "how?" to make the future accessible and successful for my child.

With each new post, I will make sure to credit the source and offer a link to the original so you can learn more and become better equipped to help your loved ones find their place in this world. So, join me on the rest of this journey as we learn and share together as we move towards helping all of those touched by autism find peace in this puzzling world.

Blessings!
DC

Friday, August 1, 2014

New study out on brain flexibility

Hi folks! It's been a busy, busy summer. Some great new research just came out and I wanted to share. Another piece in the puzzle...
Blessings!
DC


Less Flexibility Seen in Brain Wiring of Kids With Autism: Study

Scans reveal differences that might explain why transitions are difficult
Tuesday, July 29, 2014
HealthDay news image
Related MedlinePlus Page
TUESDAY, July 29, 2014 (HealthDay News) -- When most children take on a task, various brain connections fire up. But scans showed less of this neuro-boosting activity in kids with autism, according to a small new study.
Moreover, children with more severe symptoms of autism displayed even less of this "brain flexibility," the researchers found.
"This reduced flexibility often causes difficulty when children with autism are faced with new situations," said study lead author Lucina Uddin, a neuroscientist and assistant professor of psychology at the University of Miami in Florida. "Knowing how the brain responds differently in these scenarios can help us to make transitions easier for these kids."
The finding -- published July 29 in Cerebral Cortex -- won't immediately lead to improvements in prevention, diagnosis or treatment of autism, which is estimated to affect one in 68 children in the United States. Still, it may provide more insight into the mysterious workings of the brain in autism.
People with autism have trouble interacting with others because they can't interpret many social signals that humans send to one another. They also engage in repetitive behaviors, such as obsessively focusing on one topic, or repeating the same action over and over.
"Based on our recent findings of overconnectivity in the brains of children with autism, I wanted to test the idea that a flexible brain is necessary for flexible behaviors," Uddin said.
In the new study, researchers performed brain scans on 34 children with autism and 34 typically developing children while at rest and while performing a task -- either solving math problems or distinguishing faces from one another. The idea was to include tasks that would -- and wouldn't -- significantly challenge kids with autism.
The kids with autism did as well as the others on the tasks. However, "across a set of brain connections known to be important for switching between different tasks, children with autism showed reduced 'brain flexibility' compared with typically developing peers," Uddin said.
The researchers also found a connection between the severity of restricted and repetitive behaviors and the degree of inflexibility.
In the big picture, "the findings may help researchers develop new therapies that target brain flexibility through strategies, tools and games that improve task-switching, for example," said study co-author Kaustubh Supekar, a science research associate with the department of psychiatry and behavioral sciences at Stanford University School of Medicine.
Jose Perez Velazquez, a senior scientist with Toronto's Hospital for Sick Children, cautioned that just because the brains of people with autism work differently doesn't mean that they work in a worse way. When it comes to behaviors, "which ones we want to label pathological or deviant is, many times, a matter of taste," said Velazquez, who wasn't involved in the study.
SOURCES: Lucina Uddin, Ph.D., assistant professor, psychology, University of Miami, Florida; Kaustubh Supekar, Ph.D., research associate and scientist, department of psychiatry and behavioral sciences, Stanford University School of Medicine, Palo Alto, Calif.; Jose Perez Velazquez, Ph.D., senior scientist, neurosciences and mental health, Hospital for Sick Children, and professor, department of pediatrics and the Institute of Medical Science, University of Toronto, Canada. July 29, 2014, online, Cerebral Cortex
HealthDay

Wednesday, July 2, 2014

We're living proof!

People ask me all the time how I got my little man to talk. I usually answer, "prayer!" But, seriously, we attribute 95% of his speech development to getting his iPad soon after he turned 3. We found a great app on there called VAST Autism 1- Core, which shows a human mouth articulating single sounds, then combined sounds and continues to increase gradually to phrases and short sentences. I believe the reason he took so well to this program is that it's a human mouth but no eyes. I know, that sounds crazy, but the eyes are the part of the face that transmit most of the non-verbal emotional cues and for a lot of kids on the spectrum, it's too much. Taking away the eyes, and, thereby taking away the emotion, was the magic combination for him. Now, this research just came out this week showing the link between the use of iPad/tablets and speech development. I couldn't wait to share it with all of you!
Blessings!
DC

iPads May Help Boost Speaking Skills in Kids With Autism: Study

Combining use of device with therapy sessions helped minimally verbal children talk, interact
Tuesday, July 1, 2014
HealthDay news image
Related MedlinePlus Page
TUESDAY, July 1, 2014 (HealthDay News) -- Adding access to a computer tablet to traditional therapy may help children with autism talk and interact more, new research suggests.
The study compared language and social communication treatment -- with or without access to an iPad computer tablet -- in 61 young children with an autism spectrum disorder (ASD) and found that the device helped boost the effect of the treatment.
"All the children improved, but they improved more if they had access to the iPad," said Connie Kasari, professor of human development and psychology and psychiatry at the University of California, Los Angeles' Semel Institute for Neuroscience and Human Behavior.
The children used the iPad when they were engaged in play, she said. "It focused on helping them initiate conversation, using the iPad to comment on what they were doing. The iPad worked because it is a visual stimulant with auditory feedback," she explained. For instance, children would mispronounce a word, hear it pronounced correctly on the iPad, and then learn to say it correctly, she said.
But, Kasari emphasized, "The iPad is just a tool." It worked because it was used within a treatment aimed at helping improve the children's communication skills, she noted.
The study was published in the June issue of the Journal of the American Academy of Child & Adolescent Psychiatry. Autism Speaks, a research and advocacy organization, funded the study.
Autism spectrum disorders are a group of developmental disorders. Communication and social problems are hallmarks of ASDs. As many as one in 68 U.S. children has an autism spectrum disorder, according to estimates from the U.S. Centers for Disease Control and Prevention.
Children in the study were between the ages of 5 and 8. All were considered "minimally verbal," which experts define as speaking fewer than 20 functional words, Kasari said. "The majority had far fewer." About 30 percent of children with an autism spectrum disorder are minimally verbal, she said, sometimes even after years of treatment.
For the first three months, all of the children received two sessions a week, totaling two to three hours a week. At the three-month mark, nearly 78 percent of children in the iPad-added group had an early response, but just 62 percent of those in the group without it did, the investigators found.
An early response was defined as an improvement of 25 percent or more in half of the 14 measures, such as the number of spoken words and the use of new words, Kasari said.
If a child was not progressing at the three-month mark, the researchers added the tablet. But adding it later was not as effective as using it from the start, Kasari's team found. The researchers followed the children for three years.
"The idea of using an iPad is a novel approach," said Dr. Ruth Milanaik, an attending physician at the Cohen Children's Medical Center in New Hyde Park, N.Y. Milanaik treats children with autism and reviewed the study's findings.
"The idea of technology being used to help children who really need different approaches is so important," she said. It's crucial, however, she agreed, to understand that the iPad "was simply a tool" and that it was an adjunct to the traditional interventions that aimed to improve communication and other developmental advances.
While a 25 percent improvement -- the measure used to define response -- may not seem like much to some, Milanaik said that "every small step, for the parents of an autistic child, is monumental."
Kasari and her team are continuing to study the iPad, planning to enroll about 200 children in four cities during a planned five-year study.
If the research continues to bear out, the hope would be to use the iPads in school programs and to train parents in its use at home, both experts agreed.
SOURCES: Connie Kasari, Ph.D., professor, human development and psychology and psychiatry, University of California, Los Angeles, Semel Institute for Neuroscience and Human Behavior; Ruth Milanaik, D.O., attending physician, Steven and Alexandra Cohen Children's Medical Center, New Hyde Park, N.Y.; June 2014, Journal of the American Academy of Child & Adolescent Psychiatry
HealthDay
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